Wednesday, February 13, 2008

Tuskegee

While listening to Alex Chadwick's report about the Tuskegee experiment I was once again saddened by the Tuskegee experiment that began in the 1930's. Although we often hear about bad things happening, the course and disclosure of this experiment continues to be dramatic. I had previously learned about this study in a sociology class, and my professor did not spend much time going over the details. Although the NPR clip is short and the text is quite brief, I think that the collection of people who speak during the segment is quite interesting. I enjoyed listening to Jean Heller speak about her struggles to publish this story and unmask forty years of history. I, also, secretly appreciated that the main reporter was a female; after learning about the exploitation of females and minority groups I was glad that Heller, a female, was the one who publicly uncovered the story. Additionally, I automatically thought about a book titled Mama Might Be Better Off Dead. This book discusses the quality, access, and cost of health care for those living in the poor communities in Chicago. The book primarily focuses on an African American family and traces their experiences with the local hospitals. One of the men in the story comment about his fear of white male doctors and notes that abuse and experimentation that some of his friends faced while in prison. Why is it that our government allows or turns a blind eye to this type of treatment? It is so unfortunates that despite Tuskegee, minorities still continue to be violated or feel uncomfortable in the presence of a doctor. The male character in the story mentions the history of Tuskegee and how the African community is haunted by the power of the government; he, along with many others, still cannot trust the government.
Exploitation of minority groups is just plain awful. Our readings from this week demonstrate how this has happened quite frequently throughout our history. If it is not one group, then it is another. Although health officials think that they are "helping" in some way, they really are not. For example, Smith notes in his piece Natural Laboratories that Native Americans were being immunized with trial and medical drugs that they did not even know about. In the end, science and much research has proven that these immunizations may be harmful, rather than helpful, to the people.
I hope that we can learn more about the Tuskegee experiment and what has happened since President Clinton's public apology. Although the victims and their families received a settlement and health care, I would like to know how they are doing today? Many of the men have probably passed away, but their wives, children, and family members must still live with this haunting memory. Like Charlie Pallard says in the clip, people would no longer shake his hand after the Washington Evening Star published the story. Are men and women in Tuskegee still stigmatized by syphilis or diseases? How have these families reconciled with a major disappointment in the government. Additionally, I would like to more about folk medicine, as it was mentioned in the audio clip and text. Public Health Services got people to join the study by saying that they would fix their "bad blood," and I am pretty sure that some of these traditions still exist today. Maybe we will learn more when reading Anne Fadiman's book The Spirit Catches You and You Fall Down.

2 comments:

Maria said...

The audio clip and the accompanying article are incredibly shocking, and more importantly, they remind us that institutional racism is not such distant history as we are often led to believe. KS mentions in this post the stigma attached to the victims of the experimentation once the details came to the public eye. I also see this as one of the more tragic elements of an overall tragic story - that firstly, doctors were instructed to coerce these patients into [non]treatment, preying upon their need for free treatment, and finally, that these victims continued to be victimized and feel shame within their communities once their disease became common knowledge.

cait said...

A lot of the articles that we have been reading cut a lot deeper the moment we stop to think what happened next. What was the outcome? What were the effects days later, years later, centuries later? Who was affected that we don't even know about? Tragic experiments like this are tragic enough alone. It only intensifies the situation to consider how widespread and long-lasting the effects can be. Even after getting through this, I wonder if Charlie Pallard ever felt completely secure again. I realized this while reading the "Not Just Passing" article as well. It's not just transgenders who experienced rejection and hatred. The hatred shown them affected their family dynamics and friendships as well. Even if they passed as the other gender, even if they made it out without conviction, the pressure they endured would change the rest of their lives and wreck many relationships. Never enough do we consider the extensive repercussions of our actions.